Child Life On Call: Parents Of Children With An Illness Or Medical Condition Share Their Stories With A Child Life Specialist
Episode 162 | Kayla’s Story - A daughter with Ollier’s Disease
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 0:43:48
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Sinopsis
On todays episode of the podcast, Katie along with co-host Mijha Godfrey from Jambo Books, interview Kayla Gunderson, who's daughter was diagnosed with Ollier's disease. You will get to hear how Kayla navigated her daughter's diagnosis just weeks after giving birth to her son and her valuable perspective as a nurse and former Child Life Specialist. We talk about navigating grief, the support of her spouse and loved ones and what Claire has taught Kayla along this journey. [4:47] Mijha shares about Jambo books [7:00] Kayla introduces herself [9:40] Small bumps on her daughter's finger [10:27] Full body rash from amoxicillin reaction [12;23] Playing phone tag with the doctor [12:44] Mention of Ollier's Disease [15:29] Emotions run high after receiving a diagnosis of Ollier's disease [16:50] Blaming yourself [19:12] Understanding Ollier's disease [20:40] Expressing her feelings at her postpartum appointment [22:17] Ollier's is a rare disease [23:18] The delivery of information can make or break you [24:07] Mijha