Mormon Stories - Lds

1741: Dealing with the tragedy of infant death as Mormon parents - Martine & Stuart Smith Pt 2

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Sinopsis

Martine & Stuart have their first child, Nathaniel, who was diagnosed with Epidermolysis Bullosa (EB), a rare, painful, and ultimately fatal genetic skin condition. Caring for a child with EB is an immense emotional toll on them due to the constant pain the baby suffers with basic daily tasks like feeding & changing diapers. This episode delves further into the contradictions and complexities of Mormon doctrine around reproduction which made it difficult for Martine and Stuart to come to terms with Nathaniel's condition. They felt guilt and self-blame upon his diagnosis, questioning whether it was punishment for wanting to wait to have children, or due to a "Saturday's Warrior" type pact agreed to in the pre-existence. The doctrine of pre-mortal decisions and the effects on disabilities was also discussed, along with the contradictory messages about disabled or sick children and those who die before accountability. As Nathaniel's condition worsened, the couple sought healing through priesthood blessin