Just A Spoonful
ME/CFS Advocate Kolt
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 1:15:59
- Mas informaciones
Informações:
Sinopsis
JASP is back! For ME/CFS Awareness Day, Kaitlyn sits down for Just A Spoonful with disability advocate Kolt to chat about life with ME/CFS, the pressures on people with ME/CFS to seek 'cures', and the benefits and pitfalls of online chronic illness 'influencer' culture. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, disabling disease that affects multiple systems in the body, and is classified by the World Health Organisation as a neurological disorder. There are estimated to be up to 250,000 Australians with ME/CFS, and around 25% of people with the condition have Severe ME, leaving them bedbound or housebound. Emerge Australia has more information and resources. Kolt is a neurodivergent and chronically ill disability advocate whose advocacy is most focused on Energy Limiting Conditions like ME/CFS (which we both have); they seek to continually push the boundaries of non-disabled and privileged folks' understanding of disability and oppression. Kolt is queer, trans, and a white t