Child Life On Call: Parents Of Children With An Illness Or Medical Condition Share Their Stories With A Child Life Specialist

On today's episode of the podcast, Emily Lemke shares how to stay organized as a medical parent. Emily's expertise comes from being a medical parent herself and a clinical social worker. She shares about her own journey navigating the world of being a medical parent and the passion behind creating The Medical Mama Compass. You will learn how to manage everything that comes with this title without becoming overwhelmed. [1:52] Introducing her family [2:38] Nora's premature birth and 97 day NICU stay [4:26] Coming home from the NICU with a G-Tube [5:48] Finding a feeding tube solution for Nora [7:15] Feelings surrounding taking your medically complex baby home from the hospital [8:40] Solution focused mindset [11:10] How to help manage the new equipment [12:20] Learning all about health insurance [16:00] The Medical Mama compass uses (A first time discharge MUST have!) [16:37] Document everything, even for insurance. it is a practical way to advocate [17:58] Keep track of your child's progress no matter how smal