Be Fulfilled : The Real Stories Behind Success
Facing Batten Disease Head On - Christopher Velona
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 0:28:31
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Sinopsis
What would you do if you got news today that your child was going to die? What would that cause you to do, would you drop everything and run in the opposite direction or would you face it head on? On this episode of BEFULFILLED, you’ll hear from the director of Project Sebastian, Christopher Velona. In his conversation with Tony, Christopher opens up about his son Sebastian and his fight against Batten Disease, his definition of success, fundraising goals they’ve reached, how their family has rallied together, and so much more....Find www.projectsebastian.org/ here, or connect on Facebook at www.facebook.com/projectsebi/.You can connect with Tony on his site, www.tonygrebmeier.com/, or in the BEFULFILLED Facebook group here: www.facebook.com/groups/befulfilled/. See acast.com/privacy for privacy and opt-out information.