Ponderings From The Perch

Amplifying patient voices transforms healthcare outcomes beyond what medical professionals alone can achieve. On this episode of Ponderings from the Perch, the Little Bird Marketing podcast, host and CEO Priscilla McKinney talks with guest and Senior Vice President at Rare Patient Voice, Pam Cusick, about the critical importance of including patient perspectives in healthcare research and product development. They discuss how patients with medical conditions are the true experts of their experiences, yet historically, they have been underrepresented in developing products and services meant to serve them. They explore the transformation happening in healthcare research methodology, where the focus shifts from what doctors think patients need to what patients experience. Cusick emphasizes how her company connects researchers with a community of 180,000 patients and caregivers across 1,500 conditions, creating opportunities for meaningful B2B content marketing that genuinely addresses user needs. This partner