Blood & Cancer

The SECURE-SCD registry was designed to collect and disseminate information on patients with sickle cell disease (SCD) who develop COVID-19. Two of the registry’s organizers are Amanda Brandow, DO, and Julie Panepinto, MD, both of the Medical College of Wisconsin/Children’s Wisconsin in Milwaukee. In this episode, Dr. Brandow and Dr. Panepinto discuss SECURE-SCD and its findings with host David H. Henry, MD. SECURE-SCD is an online registry that was launched in March 2020. On the registry’s website (https://covidsicklecell.org/), health care providers can submit deidentified data on patients with COVID-19 and SCD. The submitted data are then published on the website. Updates are made regularly, usually every Friday. The following information from SECURE-SCD was current as of recording this episode. SECURE-SCD includes data on nearly 300 SCD patients with COVID-19. Eight countries and more than 25 U.S. states are represented in the registry. The average patient age is 25.5 years, with the largest population