Diabetes Connections With Stacey Simms | Type 1 Diabetes |

Once called deliberately non-compliant, this week's guest is all about the importance of language when it comes to diabetes. Renza Scibilia has some strong opinions about why words really matter. We’ll talk more about her non compliance – it has to do with her Looping, using one of the do it yourself options - and about her diagnosis as a young adult. Plus, information from Diabetes Australia and The Grumpy Pumper In our Community Connections this week, the Type 1 Renegade Run is making noise in the Northeast. The event this past weekend marks the 7th year of this obstacle course and block party. And a closer look at keeping insulin at the right temperature from the pharmacy to your fridge. JDRF, ADA & Helmsley Trust are teaming up to study this issue.  Did you see Chris Ruden pop up in the NBC Titan Games promo?! Here's our interview with the T1D body builder from last year.   Join the Facebook Group!  ----- 1:30 Stacey Welcome - Syracuse and DC round ups, looking ahead to the DiabetesMine Summit 4:00 I

Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here. Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry.  Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure! Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies. Join the Facebook Group!  ----- 1:30 Stacey welcome - information about the podcast on YouTube 5:15 Interview with Darrell Greene 49:00 Information on Lilly's faster insulin - Pronto Studies ------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go!

JDRF’s Chief Mission Officer Aaron Kowalski talks about what’s new and next in terms of research. He also gives us perspective on what’s come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we’re all very familiar with now, but that almost didn’t happen. Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1. Plus.. how do you get rid of needles and Sharps containers? The rules aren’t the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live.   Join the Diabetes Connections Facebook Group!  ----- 1:30 Stacey welcome 4:10 Interview with Aaron Kowalski 52:30 Information about Sharps Containers from SafeNeedleDisposal------ Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android 

The Fox TV show "The Resident" takes on type 1 diabetes and gets it right! This week's episode "The Prince and the Pauper" features two plot lines about diabetes. Stacey speaks with the co-executive producer Andrew Chapman on why this issue and why now. Chapman lives with LADA (Latent Autoimmune Diabetes in Adults) also known as type 1.5. He tells Stacey there are two other people with diabetes on the writing staff. Drew Chapman's author page See Chapman's play 99 Tropes in Seattle later this year! Learn more about LADA in previous episodes: The DIYPS (LADA featured in the Community Connections) Also features information about the start of OpenAPS Disney Channels' Jennifer Stone Shares Her Story Game show episode: Wait Wait Don't Poke Me! (From July) When TV & Movies get diabetes wrong (Beyond Type 1 article) Also this week, what researchers are learning about OpenAPS – the do it yourself closed loop – from Twitter conversations! Read the study write up here.  Join the Facebook Group!  ----- 1:25 Stacey

A difficult but important interview with Nicole Smith Holdt. Her son, Alec, died in 2017 just after he came off his parents' health insurance and realized he couldn't afford his supplies. He began rationing insulin and died less than a month later. Stacey talks to Nicole about how this could have happened and what her message is to the diabetes community and to lawmakers. Nicole will be at the #Insulin4All rally and protect Sept 30 at Eli Lilly headquarters. More information: Insulin4All Protest information NPR: High Price of Insulin Leads to Lethal Rationing Snopes: Did Alec Smith Die Because He Couldn't Afford Insulin Join the Diabetes Connections Facebook Group  Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android 

"Open Up Your Bag" is a new children’s picture book about diabetes. The story behind it takes us into a great conversation with the author Mike Lawson. Mike was diagnosed as a young adult (after initially being misdiagnosed as type 2) and he shares stories about finding the diabetes community, getting involved in organizations like TuDiabetes.Org and Diabetes Hands Foundation and what led him to write the book and start Diabetes Doodles Plus, a new resource for our community is now available in audio form. Listen to a bit of Bright Spots and Landmines, a diabetes guide by DiaTribe's Adam Brown Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! You can get Bright Spots and Landmines by using this link. Learn more about A Bad Case and listen to our previous interview with Erin Spineto  Join the Diabetes Connections Facebook Group!  ----- 2:00 Stacey Welcome - Hurricane Florence update and "A Bad Case" is being released 5:20 Interview with Mike Law

Big news for Abbott, the makers of the FreeStyle Libre. This summer the FDA okayed a shorter warmup and a longer wear for the glucose monitor. Stacey talks to Tim Dunn, Abbott’s Director of Clinical research. They talk about the challenge of longer wear, the practical info you need to know if you use the Libre, and a look down the road as they partner with companies like Bigfoot. Plus, a protest planned at the end of the month – all about affordable insulin. We’ll explain how you can help even if you can’t be there in person. Information from T1International here. Join the Diabetes Connections Facebook Group!  ---- 1:30 Stacey Welcome 4:30 Interview with Tim Dunn 40:30 #Insulin4All Protest information  43:00 Stacey upcoming events & shares why in-person connection is important. She talks about the first time she and Benny met a little boy who wore an insulin pump and what a difference that made for them.  Use this link to get one free download and one free month of Audible, available to Diabetes Connecti

Letting go of your college-aged child is a challenge even without type 1 on board! We talk to the College Diabetes Network, a college senior with T1D and her mom about fears, communication and making it work. CDN recently surveyed parents about their fears and we'll share the top ten. Plus, medical help for your 18+ year old child. Even if they're still on your health insurance plan, you can't assume you'll be able to help in an emergency or access their medical records. Here are a few articles to help: Consumer Reports - Help your college aged child in an emergency Grown & Flown - When your college kid has an emergency And Stacey shares how what she calls on her of worst diabetes parenting moments became one of her best.  Join our Facebook group ----- 1:33 Stacey welcome, mentions Jewish holiday carb counts from Beyond Type 1 and Project Blue November 3:50 Interview with CDN's Stacey Cunnington, Courtney & Karlyn Gale 55:00 Stacey reads the entire list of Top Ten Fears Shared by Parents of T1D Colleg

It's been 20 years since Nicole Johnson took the crown, becoming Miss America. That was just five years after she was diagnosed with type 1. At diagnosis, her doctors told her she was too sick to continue college, to pursue her dreams of being a journalist and to have a baby.  Nicole shares how she overcame that prediction to go on to finish school, compete and win pageants and to have a child a few years later. We’ll also talk about some controversy among the Miss American organization today. Other Miss America contestants with type 1 include Sierra Sandison and Caroline Carter (click to listen to our previous interviews with them) Plus, one small step toward a DIY Omnipod Loop. Learn more about OpenOmni. Stacey also shares a recent issue with Benny's insulin pump and what they did for a backup plan.  This podcast is not intended as medical advice. Please contact your health care provider with any questions.  Join the Diabetes Connections Facebook Group!  ----- 1:50 Stacey Welcome  2:45 Stacey talks about th

Tandem's Predictive Low Glucose Suspend is out! Stacey and Benny got the software update on Saturday, August 25, 2018 and this bonus episode includes Stacey's thoughts on how the first few days turned out.  More information on the Basal IQ software here. Head over to Tandem's portal to sign up to get the update if you already have a Tslim X2 pump and a Dexcom G6 Get the podcast on your Amazon Echo! Join our Facebook group Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go!

Instead of a rescue Glucagon shot, how about a nasal spray? A simple spray for emergency low blood sugar is in front of the FDA right now. We speak with Lilly Diabetes Senior Medical Director Dr. Thomas Hardy about the need for this product, what it is and how it works.  In our Know Better segment.. a quick tip about Dexom’s G6 - save your papers!! More in Stacey's Facebook live video here. And a bit about the Bike Beyond documentary.  Stacey says it wasn't what she expected at all. You can buy the DVD here or find out how to host a watch party.  Join the Facebook Group!  ----- 1:35 Stacey Welcome - thanks to DiabetesMine and Jacobs Media (& Elsie Escobar) for featuring us in recent columns 5:30 Interview with Dr. Thomas Hardy, Medical Director for Lilly Diabetes 28:30 Stacey shares her mistake when she was training again on injectible glucagon 32:00 Dexcom G6 information - keep your paper 35:30 Bike Beyond - Stacey's review of the documentary ------ Sign up for our newsletter here Get the App and listen

It's time for back to school with T1D. Do you know your child's rights and how to best talk to school staff? We have an in depth conversation with Crystal Woodward, Director of the American Diabetes Association’s Safe at School program.  Crystal talks about daycare, preschool and elementary schools. She knows her stuff - in addition to heading up the ADA's program, Crystal's daughter was diagnosed as an infant and is now an ICU nurse.  Plus, a ready to use glucagon pen goes to the FDA.. what would the first room temperature-stable liquid glucagon mean for us? Find out about Xeris's product and the unique way they filed for approval. Join the Diabetes Connections Facebook Group!  ----- 1:20 Stacey welcome and a little bit about sending Benny to daycare and Kindergarten. Mentions FB Live where we announced being selected as a Top Ten Health Podcast (The Podcast Awards) 4:45 Interview with Crystal Woodard about ADA's Safe at School 52:30 Stacey talks about easy podcast apps to use if you're listening on Facebook

Can you pilot a plane when you have diabetes? Our guests this week say absolutely yes! Two private pilots, Douglas Cairns and Thor Dahl, share their stories and explain why they went after a world record recently. They visited the most US states in 24 hours, to show that a T1D diagnosis shouldn’t ground you. We talk about the current regulations surrounding flying in the United States and other countries and why Douglas and Thor continue to push the limits toward change. Check out Douglas's websites Flying with Diabetes and Pilots with Diabetes. Plus, a little bit of an editorial this week. Stacey talks about how she posted in her local group about the really widespread use of the word “dread.” She's not a fan - why she wants us to think before we use it again. Stacey is the MC for the debut of Bike Beyond - The Documentary in Charlotte this Sunday 8/19. We followed them coast to coast last summer. You can hear more about the ride here and more about the plan for the documentary in this episode. Watch the tra

One of the problems in carrying low treatments everywhere is actually carrying them. This week, learn about a glucose necklace expected to come to market this fall. Inventor Kris Maynard is a former fire fighter and first-responder who lives with type 1.  Stacey talks to Kris about the product, gets some advice about medical alert bracelets, tattoos and what we can do before we call 911. Kris shares the frightening low blood sugar that prompted this new product. Plus a little bit from Benny about sending kid with diabetes to non-diabetes sleep-away camp. He and Stacey chat in the car about what he does to make his four weeks away work out. And we talk about Jesse Was Here. It's a new program from Beyond Type 1 and Jesse's mom, Michelle Page-Alswager. Michelle's blog referenced by Stacey can be found here.  Join the Facebook Group!  ----- 1:40 Stacey Welcome 4:25 Interview with Glucose Revival Inventor Kris Maynard 17:35 Stacey explains Jesse Was Here 22:20 Stacey & Benny talk about camp (in the car on the

Diagnosed with type 1 at the age of nine, Mark Andrews dreamed of playing professional football. His dream came true earlier this year when he was drafted by the Baltimore Ravens. They kick off their NFL season this week with the preseason Hall of Fame Game. Stacey talks to Mark about his diagnosis and how he manages T1D at practices and game days. Mark also shares how a teenager really feels when his parents worry about those highs and lows during sports. Plus, a South Carolina firefighter gets a big surprise from OneTouch. We'll tell you about Perry Clanton’s Small Victory - he lost 96 pounds after being diagnosed with type 2 diabetes and now he's helping his fellow fire fighters get healthy. And Stacey is one of the winners of DiabetesMine's Patient Voices Contest! She'll be traveling to their Innovation Summit in November.  Join the Facebook Group (It's awesome)  ----- 1:20 Stacey Welcome 3:45 Interview with Mark Andrews 36:15 Interview with Bridget Kimmel from LifeScan and Perry Clanton, SC Firefighter 4

It's our very first show on the road, taped in front of an audience. Nothing serious. In fact, it was a game show – with trivia questions, limericks and more! Play along at home and see how you stack up against our contestants. Our panelists are: Rodney Miller, founder of Bolus and Barbells, Christel Aprigliano, founder of DPAC, Christopher Snider, Community Manager with Tidepool and our scorekeeper/announcer is Moira McCarthy author of Raising Teens with Diabetes Join the Facebook Group!  ----- 1:15 Stacey Welcome 2:20 Wait Wait Don't Poke Me - taped live at Friends for Life! 46:00 More information about the show - audio issues explained, Stacey explains some of the "inside jokes" during the show, including Scott Johnson of MySugr (he was sitting in the front row and we mentioned him a few times) ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android   

It's been more than 30 years since the play & then the hugely popular movie Steel Magnolias came out. It still continues to be a focal point for women, pregnancy and diabetes. When Stacey's local theater announced their production, she decided to put together this round-table of moms who have type 1.  You'll hear from: Kerri Sparling, author of Six Until Me & “Balancing Diabetes.” Melissa Lee, Director of Community Relations for Bigfoot Biomedical & Kyrra Richardson, founder & Creative Director of Myabetic Kerri, Melissa & Kyrra talk about their feelings around Steel Magnolias, their experiences with diabetes during pregnancy and now as they raise their children. Resources: JDRF Pregnancy Toolkit http://www.jdrf.org/wp-content/uploads/2013/02/Outreach_pregnancy_12-14-12.pdf Diabetes Sisters:  https://diabetessisters.org/blog/qa-ginger-vieira-pregnancy-and-diabetes https://diabetessisters.org/blogs/pregnancy-motherhood    https://diabetessisters.org/sites/default/files/FINAL%20POSTER%2007.

You’re hearing a lot right now about Children with Diabetes Friends for Life. The largest family diabetes conference in the world starts this week. But how did it begin? What's it about? You’ll hear from the founder of the whole event. (This episode contains excerpts from our interview with Laura in 2015. You can listen to that whole episode here) Plus, questions from the Facebook Group for Stacey. Some diabetes, some personal.  Join the Diabetes Connections Facebook Group!  ----- 1:00 Stacey Welcome 4:30 Excerpts from interview with Laura Billetdeaux 19:45 Facebook Group: Ask Me Anything 40:00 Stacey talks about her latest Audible download Information about Audible - Get your 30 day free trial and free book here 41:50 Next week: Moms who have type 1 talk about Steel Magnolias ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android   

Tandem answers your questions about the newly approved and not- yet-released Basal IQ system. The FDA took a lot of people by surprise by approving it with the Dexcom G6. We talk to Tandem's Molly McElwee Malloy about how the system works, when it'll be available to T:Slim users and what's next for the company. Malloy addresses why Tandem decided to pursue integration for Basal IQ with Dexcom's G6 when it had been initially submitted to the FDA with G5 technology. Plus, in our Know Better segment this week, a Koala with type 1 may become the newest Dexcom poster child. You might have seen Quincy on social media.. now we’ll hear from his caretakers at the San Diego zoo. Join the Facebook Group! ----- 1:30 Stacey Welcome- talks about Diabetes Connections the Game Show happening at Friends for Life. Please join the Facebook Group to find out more and learn how you can play along and win prizes even if you don't come to the conference this month. 4:00 Stacey recaps what Basal IQ is all about.  Molly first spoke t

Many baby boomers have lived with diabetes for decades, others are newly diagnosed. But everyone finds when they reach 65.. things get complicated. That’s because of course 65 is when Medicare kicks in. Our guest, Dennis Goldensohn has lived with T1D for 50 years and is finished his first year on Medicare. He’s got a lot to say. Plus.. a look at Medicare’s new policy regarding Dexcom Share – don’t throw away your receiver yet! Read Test Guess & Go for Dexcom/Medicare information More information here with the updated Medicare policy And I’ll share a little bit about the start of our summer and diabetes camp. Benny went noodling(!) and had a difficult diabetes situation later that night. Stacey shares how he handled it and what went through her mind hundreds of miles away.   Join the Diabetes Connections Facebook Group!  ------ 1:30 Stacey welcome, talks about ADA Scientific Sessions, Tandem Basal IQ approval (more next week). 4:45 Interview with Dennis Goldensohn 30:30 Stacey talks about Medicare/Dexcom