Sinopsis
The goal of our Ask the Expert podcast series is to share with our community the latest research and information on rare neuro-immune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions of experts who specialize in these disorders. These are moderated podcasts based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcast series, you can share your thoughts by sending an email to info@myelitis.org and please use TMA Podcasts in the subject
Episodios
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304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM
13/04/2015 Duración: 55minUnderstanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM
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303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101
13/03/2015 Duración: 52minUnderstanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101
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302. Hablemos de Mielitis Transversa y Neuromielitis Óptica
16/02/2015 Duración: 56minHablemos de Mielitis Transversa y Neuromielitis Óptica
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301. Understanding Vaccinations and Autoimmune Diseases
22/01/2015 Duración: 59minUnderstanding Vaccinations and Autoimmune Diseases
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210. Understanding Transverse Myelitis: TM 101
09/12/2014 Duración: 58minUnderstanding Transverse Myelitis: TM 101
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209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?
13/11/2014 Duración: 53minSupport for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?
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208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis
16/10/2014 Duración: 49minUpdate on Outbreak of Paralysis in US: Acute Flaccid Myelitis
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207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases
13/10/2014 Duración: 56minThe Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases
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206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM
16/09/2014 Duración: 55minAlternative Therapies and Lifestyle Management after TM, NMO and ADEM
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205. Understanding Clinical Trials in NMO and TM
18/08/2014 Duración: 56minUnderstanding Clinical Trials in NMO and TM
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204. Understanding Pediatric NMO, ADEM and TM
18/07/2014 Duración: 01h01minThe podcast on “Understanding Pediatric NMO, ADEM and TM” as part of TMA's Ask the Expert podcast series was held on July 18, 2014 a 4:30 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from University of Texas Southwestern and Dr. Teri Schreiner from University of Colorado School of Medicine and Children's Hospital Colorado. Over 30 people dialed-in to listen to the Live Podcast, which was moderated by our guest moderator, Samuel Hughes. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue & Cognition, Spasticity Management, and more to address your questions and concerns.
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203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury
16/06/2014 Duración: 54minThe podcast on “The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on June 16, 2014 a 12 pm EST. The physician-experts on the panel were Dr. Becker from the International Neurorehabilitation Institute, Dr. Farrar from University of Texas Southwestern and Dr. Zackowski from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by the Transverse Myelitis Association's Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Spasticity Management, and more to address your questions and concerns.
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202. Understanding & Managing Neuropathic Pain
10/05/2014 Duración: 35minThe podcast on “Understanding and Managing Neuropathic Pain” as part of TMA's Ask the Expert podcast series was held on May 9, 2014 a 1 pm EST. The physician-experts on the panel were Dr. Newsome from The Johns Hopkins Transverse Myelitis Center and Dr. Allen DeSena from University of Texas Southwestern. Over 40 people dialed-in to listen to the Live Podcast, which was moderated by our guest moderator, Samuel Hughes. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Spasticity Management, and more to address your questions and concerns.
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201. Understanding Autoimmunity & Rare Neuroimmune Disorders
25/03/2014 Duración: 44minThe podcast on “Understanding Autoimmunity and Rare Neuroimmune Disorders” as part of TMA's Ask the Expert podcast series was held on March 25, 2014 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Carlos Pardo from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.
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103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations
17/12/2013 Duración: 59minThe podcast on “Children with rare neuroimmune disorders: understanding medical, educational and social considerations” as part of TMA's Ask the Expert podcast series was held on December 16, 2013 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Lana Harder from y. Over 20 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.
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102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury
17/09/2013 Duración: 46minThe podcast on “Understanding Repair and Recovery After non-traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on September 16, 2013 a 1 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Michael Levy from Johns Hopkins University . Over 75 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 45 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.
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101. Ask the Expert Podcast in Collaboration with RGI
08/02/2013 Duración: 48minThe Transverse Myelitis Association collaborated with Rare Genomics Institute to host an “Ask the Experts Podcast”. Rare Genomics Institiute (RGI) is a non-profit organization that gives families afflicted by rare genetic disorders access to genome sequencing and expert analysis. RGI helps patients with orphan diseases initiate and fund personalized research projects through a dedicated crowd-funding platform and a highly selective network of leading academic scientists and commercial institutions across the globe.Our first Ask the Expert Podcast featuring Dr. Benjamin Greenberg and Dr. Allen DeSena from the University of Texas Southwestern in Dallas, moderated by RGI's president, Dr. Jimmy Lin was held on February 7, 2013 at 7 pm EST.The podcast started with a 30-minute discussion of recent developments in technology applicable to rare diseases. Dr. Cathleen Lutz from The Jackson Laboratory discussed how mice are used in scientific research as models for developments in genomics and b